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Friday, July 04, 2008
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Taking Care of Your Feelings


What You Can Expect

What kinds of feelings are "normal"? There is no "right" way to feel; the important thing is to handle your emotions in a way that works for you. Many survivors find that the key for them is talking their feelings out-with family and friends, health professionals, other patients, and counselors such as clergy and psychotherapists.

The following stories show the range of feelings that many cancer survivors have. Each of them is a normal reaction that is often part of the cancer survivor's life.
  • "In the first 6 months after my cancer treatment, I saw my cancer more as a threat to my life plans for marriage and a career than I did as a threat to my life. I felt the most depressed and anxious during the first 3 months, but then I started to get back to normal. I say started, because I'm not sure I'm there yet. It's getting better, but I still feel a little off balance." -Marcia B.

  • "I don't intend to focus on cancer for the rest of my life. I follow my care plan but I don't dwell on the disease or talk about it to others. Some (I suppose) well-meaning people at the office said that my reaction is called denial, and that it is bad for me. I talked about it with the doctor, and he said denial can be positive when it helps you get on with your life. I have my ups and downs like every one else, but I feel good about the way I'm handling my disease."-Joe K.

  • "I have to say that there's been one positive result of my having had cancer. It made me look at the real possibility of my own death, something I had never thought much about before. That made me take a hard look at my life and decide what really mattered to me. As a survivor, I now see every day as a precious gift."-Vicki W.

  • "My cancer treatment ended 10 years ago, but I still get anxious every time I go in for a checkup. The nurse told me that's a common reaction."-Dave L.

  • "I was very surprised at how few of my friends really made the effort to 'be there' for me. I talked to the nurse about this during my last checkup. She said that people often want to help but they don't know how-and they may be embarrassed to ask. So I decided to make the first move with some of the people I cared about most. It was hard, but I think I broke down a wall when I spoke openly about my feelings and my needs. I feel much more in touch and supported now -Rhonda L.

  • "My cancer has led to some difficult family situations. The hardest thing was learning to adjust to different family roles. My wife went back to work during my recovery, and my teenage daughter had to take care of the house. As I got better, none of us was sure what roles were 'normal' and my daughter especially didn't want any changes that limited her independence. At that point the doctor suggested family therapy. I had my doubts, but seeing the real problems behind the obvious problems made a difference. After we worked through solutions together, I think we're closer now than ever before."-Ralph Y.

  • "The most important source of hope and support for me has been my faith in God. When I face my fears and uncertainties, I know I'm not alone."-Frances C.

  • "Surviving cancer has been not one condition but many. It was such happiness at the birth of a daughter in the midst of concerns about the future. It was the joy of eating Chinese food for the first time after radiation burns in my esophagus had healed. It has been the anxiety of waiting for test results and the fear that the cancer would recur. It has been having a positive attitude and wanting to strangle the people who told me that was all it would take."-Frank T.

  • "People have recovered from every type of cancer, no matter how gloomy the first reports. Yes, we're all going to die someday of something. But I plan to push that day back as far as I can, and to go out fighting whenever the time comes."-Betty R.


Briefs

Surviving Cancer-Hopeful Trends
  • There are over 8 million cancer survivors in America today.

  • If lung cancer deaths were excluded, cancer mortality would have declined 14 percent between 1950 and 1990.

  • The number of people who have survived cancer for 5 or more years has increased significantly since 1973 for cancers of the colon, stomach, testis, and bladder, and for Hodgkin's disease and leukemia.

  • Studies show that for most patients the emotional upset after cancer diagnosis and treatment decreases over time.



Tips for Coping With Survivor Stress

The following tips come from the experiences of survivors in the American Cancer Society's "I Can Cope" program. They are adapted from ideas appearing in a book, I Can Cope-Staying Healthy With Cancer, coauthored by the program's cofounder, Judi Johnson.
  • Be kind to yourself. Instead of telling yourself you can't do something you should do, focus on what you can do and what you want to do. Instead of telling yourself you look awful, think of ways to make the most of your best features.

  • Help others. Reaching out to someone else can reduce the stress caused by brooding.

  • Don't be afraid to say no. Polite but firm refusals help you stay in control of your life.

  • Talk about your concerns. It's the best way to release them.

  • Learn to pace yourself. Stop before you get tired.

  • Give in sometimes. Not every argument is worth winning.

  • Get enough exercise. It's a great way to get rid of tension and aggression in a positive way.

  • Take time for activities you enjoy, whether it's a hobby, club, or special project.

  • Take one thing at a time. If you're feeling overwhelmed, divide your list into manageable parts.

  • Set priorities. Don't try to be Superman or Superwoman.

  • Solve problems like an expert. First, identify the problem and write it down, so it's clear in your mind. Second, list your options with the pros and cons of each. Third, choose a plan. Fourth, list the steps to accomplish it. Then give yourself a deadline and act. Sometimes just having a plan can reduce the stress of the problem.

  • Eat properly.

  • Get enough sleep.

  • Laugh at least once a day.

Is a Survivors' Group Right
If you answer "yes" to most of the following questions, joining a cancer survivors' group may be a positive step for you.
  • Are you comfortable sharing your feelings with others in a similar situation?
  • Are you interested in hearing others' feelings about their experiences?
  • Could you benefit from the advice of others who have gone through cancer treatment?
  • Do you enjoy being part of a group?
  • Do you have helpful information or hints to share with others?
  • Would reaching out to support other cancer survivors give you satisfaction?
  • Would you feel comfortable working with survivors who have different ways of facing forward?
  • Are you interested in learning more about cancer and survivor issues?
  • Focus on the positive. If you have a setback, think about all of the good things you've done.


Options for Getting Emotional Support

Join a cancer survivors' group.
  • Ask your doctor, nurse, or social worker about programs available at local hospitals.
  • Call your local cancer support organizations, including the American Cancer Society, which may sponsor groups in your area. Check the telephone book for contact information.
Talk to your family and friends.
  • Help them understand how they can help you.
  • Talk about their needs for support.
Talk to your clergyman or clergywoman.
  • Consider professional mental health assistance.
  • Consult a psychologist, nurse therapist, clinical social worker, or psychiatrist.
  • For marital or family issues, consult a licensed or family therapist.
Work with someone on the medical team to solve problems.
  • Get help in dealing with your hospital, clinic, or health maintenance organization.
  • Ask about health concerns that cause you stress.
Support yourself.
  • Draw on your own strength.
  • Read about how others cope. Ask at your local bookstore for accounts by cancer survivors.
Reach out to others.
  • Helping others can help you feel stronger and more in control.
  • For some people, helping other cancer survivors is a satisfying way to reach out.


Resources

ADDITIONAL READING

Taking Time: Support for People With Cancer and the People Who Care About Them

Discusses the emotional side of cancer- how to deal with the disease and learn to talk with friends, family members, and others about cancer. Available free of charge by calling the National Çancer Institute's Cancer Information Service at 1-800-4 CANCER.

Newsletters
  • The Networker
    National Coalition for Cancer Survivorship
    1010 Wayne Avenue, 5th Floor
    Silver Spring, MD 20910
    (301) 650-8868

  • Surviving
    Pat Fobair
    Stanford University Medical Center
    Department of Radiation Oncology
    Division of Radiation Therapy, Room H013
    300 Pasteur Drive
    Stanford, CA 94305
    (415) 723-7881


ADDITIONAL RESOURCES

Cancer Survivor Groups
To find out about groups in your area, contact:
  • Your local Cancer Information Service at 1-800-4-CANCER.
  • Your local office of the American Cancer Society at 1-800-ACS-2345.
  • Your hospital social services department.

Family Concerns
To help alleviate or resolve tensions that cancer may cause in families and other close relation ships, the following associations can provide referrals to marriage and family counselors:
  • Your local Cancer Information Service at 1-800-4-CANCER.

  • Your local religious and community social service agencies (check the yellow pages for the telephone numbers).

  • Your local senior centers.

  • Your local community mental health centers.

  • American Association for Marriage and Family Therapy1100 17th Street, NW Washington, DC 20036 (202)452-0109

  • American Association of Sex Educators, Counselors, and Therapists (ASECT) Suite 1717
    435 North Michigan Avenue Chicago, IL 60611 (312)644-0828

  • American Family Therapy Association 2020 Pennsylvania Avenue Suite 273 Washington, DC 20006 (202)944-2776

  • National Association of Social Workers 750 First Street, NE Suite 700 Washington, DC 20020 (202)408-8600

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