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Friday, July 04, 2008
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Introduction

Who Should Read Facing Forward?

If you are an adult who is getting on with your life after a diagnosis for cancer, this guide is for you. Whether your treatment took place in childhood, 5 years ago, or last week, you may share common concerns with other cancer survivors. The purpose of this guide is to present a concise overview of some of the most important survivor issues and practical ideas to help you look ahead. If you are just finishing cancer treatment, the information may prepare you for situations you have not yet experienced. As you read about handling possible problems, keep in mind that not everyone will have all these concerns. If you are a long term cancer survivor, many of these issues will not be new to you. But some of the ideas and resources may add to your own experience.

Facing Forward should also be shared with your family or friends-the people who care about you. In some cases, they can use this guide to understand issues you may face so that they can support you with real understanding of your needs. In other cases, they will use the ideas and resources in this guide when acting on your behalf-for example, in processing your bills and dealing with your insurance company and your medical care providers. Finally, it is important for your family to know about how your concerns may affect them, and the options they have for getting help.



How To Use the Materials

The key to using Facing Forward is to let it meet your needs. Each chapter can stand alone, so if you are interested only in one issue right now, that chapter is all you need to read. Or you may want to read it from beginning to end to get the big picture.

Facing Forward is divided into four major chapters:
  • Continuing To Care for Your Health
  • Taking Care of Your Feelings
  • Managing Insurance Issues
  • Earning a Living.

Each chapter follows the same format:
  • What You Can Expect relates the experiences of other cancer survivors. The situations presented in these sections represent a combination of documented experiences. Some of the accounts were suggested by cancer survivors who reviewed the materials.
  • Briefs present quick facts or statistics about cancer issues.
  • Tips offers practical suggestions for handling problems.
  • Options offers alternative approaches for taking control of your situation.
  • Resources lists materials and organizations that can give you more detailed information and help.

Each section can be used in four main ways:
  • To bring up some key issues that you may find interesting.
  • To suggest topics and questions you may want to discuss with professionals who can help, such as your doctors and nurses, social workers, and clergy.
  • To serve as a long-term resource you can use over time as problems arise.
  • To help you organize your cancer information.
  • Take notes and write down the answers to the questions you ask professionals. Write in names and telephone numbers for your doctors, nurses, and social works; local cancer support resources; and insurance inquiries. Record helpful options you've found-you may want to pass the information to friends or coworkers who become cancer survivors. Keep track of your medical history: the tests, treatments, and medications you have received and when you received them.



How Facing Forward Was Developed

The National Cancer Institute's Office of Cancer Communications and the National Coalition for Cancer Survivorship worked together on the project. Our first step was to ask cancer survivors which issues were most important to them and what kinds of information they needed to take charge of their lives. Next, we looked at the growing body of research (and personal histories) on the issues important to survivors. We pulled together some of the key facts and recommendations from the experts and put the information in a style we hoped would be easy to use. Finally, we tested the materials with cancer survivors to be sure it was clear, appropriate, and relevant to "real life" situations.

We hope this guide helps you find the options that work best for you, family members, and friends as you begin facing forward after cancer.



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