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Resources
National
Institute of Arthritis and Musculoskeletal and Skin Diseases
(NIAMS)
NIAMS, a part of the National Institutes of Health (NIH),
leads the Federal medical research effort in arthritis
and musculoskeletal and skin diseases. NIAMS supports
research and research training throughout the United States
as well as on the NIH campus in Bethesda, MD, and disseminates
health and research information. The National Arthritis
and Musculoskeletal and Skin Diseases Information Clearinghouse
(NAMSIC) is a public service sponsored by NIAMS that provides
health information and information sources.
1
AMS Circle
Bethesda, MD 20892–3675
Phone: (301) 495–4484
TTY: (301) 565–2966
http://www.nih.gov/niams/
For
additional information on lupus, use a fax telephone to
call the NIAMS Fast Facts faxback system (24-hour document
retrieval) at 301–881–2731, or visit our World Wide Web
site. NAMSIC participates in the Combined Health Information
Database (CHID), a large federally supported database
of information on a broad range of diseases and related
health issues, including lupus. CHID is on the Web at
http://chid.nih.gov/.
National
Institute of Nursing Research
The National Institute of Nursing Research (NINR), a component
of NIH, supports research and research training in universities,
hospitals, research centers, and at NIH in areas related
to health promotion and disease prevention, managing the
symptoms and disabilities of illness, and improving the
environment in which patient care is delivered. Chronic
diseases, such as lupus and arthritis, are among the six
major areas of emphasis for the Institute. For more information
on the Institute and its programs, contact the NINR Office
of Science Policy and Information at:
31
Center Drive
MSC 2178
Building 31, Room 5B10
Bethesda, MD 20892
Phone: (301) 496–0207
http://www.nih.gov/ninr/
Lupus
Foundation of America
The Lupus Foundation of America (LFA) is the main voluntary
organization devoted to lupus. LFA assists local chapters
in providing services, including education, referrals,
and support groups, to people with lupus; works to educate
the public about lupus; and supports lupus research. For
more information, contact LFA at:
1300
Piccard Drive, Suite 200
Rockville, MD 20850
Phone: (301) 670–9292 or
(800) 558–0121
http://internet-plaza.net/lupus/
SLE
Foundation
The SLE Foundation supports and encourages medical research
to find the cause and cure of lupus, and improve its diagnosis
and treatment. It also provides a wide variety of services
to help lupus patients and their families. In addition,
this voluntary organization conducts a broad-based public
education program to raise awareness of lupus, and increase
understanding of this serious chronic autoimmune disease.
For more information, contact the SLE Foundation at:
149
Madison Ave., Suite 205
New York, NY 10016
Phone: (212) 685–4118
http://www.lupusny.org/
Association
of Rheumatology Health Professionals, American College
of Rheumatology
The American College of Rheumatology (ACR) is an organization
of doctors and associated health professionals who specialize
in arthritis and related diseases of the bones, joints,
and muscles. The Association of Rheumatology Health Professionals
(ARHP), a division of ACR, aims to enhance the knowledge
and skills of rheumatology health professionals and to
promote their involvement in rheumatology research, education,
and quality patient care. The Association also works to
advance and promote basic and continuing education in
rheumatology for health professionals who provide care
to people with rheumatic diseases. For more information,
contact ARHP at:
1800
Century Place Suite 250
Atlanta, GA 30345–4300
Phone: (404) 633–3777
http://www.rheumatology.org/
Arthritis
Foundation
The Arthritis Foundation is the major voluntary organization
devoted to supporting arthritis research and providing
educational and other services to individuals with arthritis.
It publishes free pamphlets and a magazine for members
on all types of arthritis. It also provides up-to-date
information on research and treatment, nutrition, alternative
therapies, and self-management strategies. Chapters nationwide
offer exercise programs, classes, support groups, physician
referral services, and free literature. For more information,
call your local chapter, listed in the white pages of
the phone book, or contact the Arthritis Foundation at:
1330
W. Peachtree Street
Atlanta, GA 30309
Phone: (800) 283–7800
http://www.arthritis.org/
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Diseases. First clinical
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News release. Bethesda (MD): NIAMS, January 15, 1996.
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